Liam Foundation

In April of 2019, I was at home with Liam and noticed jerky movements that I thought might be a seizure. We rushed him to the Montreal Children’s Hospital, where they struggled to stop the seizures. He stayed in the hospital for over a month, experiencing daily seizures and running any and all tests they could think of.

In June of that year, genetic test results showed that Liam had a form of mitochondrial disease. Mitochondrial disease is made up of different disorders that affect the body’s mitochondria, which are tiny compartments in almost every cell of the body. What that means in layman’s terms is that some cells of the body do not have enough energy to function how they are supposed to. For some people, the mitochondria of the muscle cells are affected, and their movement and strength deteriorate over time. For others, the mitochondrial disorder may be present in their eyes and/or ears, progressing into blindness and deafness. For Liam, the mitochondrial disorder exists in his central nervous system. It results in developmental delays (autism), epilepsy, and ataxia (bad balance and coordination). When Liam was diagnosed, we were told his condition would worsen over time, and that he would lose his life to this disease within 10 years.

This news has crushed our family and it has changed the path of my life. There is no cure for mitochondrial disease and research is badly needed. I have become an advocate for mitochondrial disease and I have created the Liam Foundation. The aim of the foundation is to find a treatment or cure to save Liam’s life as well as the lives of other children living with this disease. The foundation is currently funding a medication trial at the Montreal Children’s Hospital for Liam and ten other children worldwide. The hope is that the medication will boost mitochondria levels in the body’s cells, and actually improve the kids’ abilities to function.

Another huge aim of the Liam Foundation is to create a dedicated mitochondrial disease research centre at the Montreal Children’s Hospital. It would be the first of its kind in Quebec. The funding would be done in partnership with the Montreal Children's Hospital Foundation. Covid19 has delayed the process, but in the meantime, I continue to raise funds in the hope that the centre will one day be a reality and that we can establish a team to help save Liam’s life, and the lives of other children.

Finally, the Liam Foundation also just wants to spread awareness of mitochondrial disease to get the help children like Liam need. The more people know how devastating this disease is, the more they may want to help. Please help us fight our fight and find a cure for this disease.

I love you my little Liam,

Dad XX

Donations

Vinny Matrisciano, $200 – September 30, 2022


Debbie Duncan, $100 – September 23, 2022


CiMa-Pak Corporation, $1,000 – September 23, 2022

«Laughter and Love are wonderful for healing. You are lucky to have a lot of both around you, Liam. We wish you well and hope that you feel better soon.»


Edward McCarthy, $100 – September 16, 2022


TONY CALDARONE, $500 – September 15, 2022


Kandis Dupre, $6,000 – September 12, 2022

«From the friends & family of Tucker Dupre!»


Anonymous, $25 – September 12, 2022


Janet Davies – September 11, 2022


Easton Mabile, $100 – August 24, 2022

«From a friend of the Tucker Dupre family.»


Larry Robinson, $500 – August 22, 2022


Evolve PT and Sports, $100 – August 18, 2022


Anonymous, $50 – August 15, 2022


Carol Murray – August 15, 2022


Craig and Valerie Ball, $100 – August 13, 2022


Darlene Schexnayder, $25 – August 13, 2022


FMM, $5,000 – August 12, 2022

«Best of luck to Tucker Dupré keep fighting buddy!!»


Ian Welsh, $25 – August 8, 2022


Marc McArthur, $100 – August 8, 2022


Debbie Winn, $50 – August 7, 2022


Anonymous, $50 – July 30, 2022

«Those steps are turning into leaps.... Way to go Liam .❤️»


Patricia Weir, $100 – July 26, 2022


Kelly Knight, $100 – July 26, 2022


Brian OSullivan, $25 – July 23, 2022


Anonymous, $25 – July 20, 2022


Maria Cuadros, $200 – July 19, 2022


Bobby Caruana, $25 – July 18, 2022


Lise Samson, $25 – July 14, 2022


Anonymous, $50 – July 11, 2022

«I pray that a cure will be found very soon. God Bless»


Elizabeth Doucet, $100 – July 11, 2022


Barbara Paquette, $100 – July 10, 2022


Peter Kruys, $100 – July 10, 2022


Pam Norris, $100 – July 10, 2022

«Wishing Liam the best!»


Anonymous, $25 – July 10, 2022

«Gook luck little one!»


Anonymous, $25 – July 10, 2022


Mardine Dupre, $20 – July 10, 2022

«Donation for my sweet Grandson Tucker»


Anonymous, $500 – July 10, 2022

«Keep up the inspiring fight little Liam!»


Anonymous, $25 – July 9, 2022


antonio nardi, $100 – July 9, 2022


Carol Dineen, $25 – July 9, 2022

«Good Luck Liam 🤗»


Kandis Dupre, $25 – July 8, 2022

«In honor of our mito warrior, Tucker 💚»


Jack Cooper, $250 – July 8, 2022


Susan Hayward, $25 – July 7, 2022

«In memory of Claudette and my sister Jennifer»


Anonymous, $5 – July 5, 2022


Alaina Weber, $50 – July 1, 2022

«Praying for Little Tucker and all who are affected by Mito! Keep fighting and stay strong! 💗💗»


Katie Cleveland, $50 – June 30, 2022


Joslyn Paredes, $50 – June 27, 2022


Lynn Brown, $100 – June 27, 2022


Chris and Adri Greer, $100 – June 26, 2022


Cathy Cortese, $100 – June 26, 2022

«In memorial of Matthew Keenan»


Valerie Ball, $50 – June 24, 2022


Church and Dwight Canada Corp, $100 – June 21, 2022

«Nos plus sincères condoléances pour la famille de Matthew Keenan. De la part de Church and Dwight Canada»


Theresa Bonaventure, $25 – June 18, 2022


Anonymous, $50 – June 14, 2022

«Hope a marketed treatment soon for all children and people suffering with mitochondria depletion syndrome.»


Anonymous, $50 – June 12, 2022

«You are achieving such incredible results ... Never would happen without you. Hopefully this is my 1st donation .. Total respect for you all..Best wishes always .💗

FORWARD W LIAM FOUNDATION.»


Anonymous, $25 – June 8, 2022


Deborah Salmon and Garry Beitel, $100 – June 7, 2022

«In memory of Manny Reisman.»


Andrew Gaspar, $200 – June 7, 2022

«In memory of Manny Reisman.»


Mallary Sackman, $54 – June 6, 2022

«In memory of Manny Reisman»


Kim McClatchie, $25 – June 5, 2022


Suzanne Shaffer, $100 – June 5, 2022

«In honour of an incredible first annual golf tournament and the extraordinary efforts to bring awareness about mitochondrial disease and save children everywhere 💙»


Carmine Lisio, $100 – June 5, 2022

«In memory of Manny Riesman. May he rest in Peace»


Viki McArthur, $250 – June 3, 2022

«Little steps but always forward.»


Sharon Duncan, $100 – June 3, 2022


Anonymous, $300 – May 31, 2022


Pierre Paquin, $100 – May 30, 2022


Marco Martin, $25 – May 28, 2022


Jordan Turner, $25 – May 19, 2022


Senator Tony Loffreda, $250 – May 19, 2022

«Wishing you much success for this worthy cause! - Senator Tony Loffreda»


Jill Fairburn, $50 – April 18, 2022

«Sending hugs to Kenna!»


Shirley Myers, $100 – April 15, 2022


Elisa De Jean, $50 – April 15, 2022


Megan Unrau, $100 – April 15, 2022


Heather Heppner, $100 – April 15, 2022

«Blessing to you Kenna as you make this trip out east. Praying that a cure will be found soon.»


Ann Saleski – April 15, 2022


Devin Carrey, $25 – April 14, 2022


Kaylie Pederson, $50 – April 14, 2022


Erin Yeo, $100 – April 14, 2022

«For Kenna»


Lindsey Mitchell, $100 – April 14, 2022


Patricia Weir, $100 – April 14, 2022

«For Kenna and all the kids suffering from this disease🥰»


Emily Jackson, $100 – April 14, 2022


Monia Bergeron, $500 – April 7, 2022

«My prayers are with you in your endeavour - this is a very important cause for a very special boy.»


George Colby, $250 – April 1, 2022


Kevin James Reason, $145 – March 25, 2022


Kevin James Reason, $125 – March 25, 2022


Anonymous, $100 – March 10, 2022


Anonymous, $75 – March 7, 2022


Tommy Dupre, $500 – February 21, 2022


Rhonda Hughes, $50 – February 20, 2022


Amélie Lamoureux, $75 – February 6, 2022


Shirley Myers, $100 – February 5, 2022


Jacqueline Jones, $100 – February 1, 2022


Chad Jones, $25 – February 1, 2022


Anonymous, $500 – February 1, 2022


Sabrina Chartrand, $50 – January 30, 2022


Veronica Sangster, $50 – January 21, 2022


Alyssa Gaudinier, $500 – January 15, 2022


Morris Cohen, $100 – January 15, 2022


Marianne Jacob, $250 – January 11, 2022


Lakeisha Miller, $25 – January 4, 2022

«I am grateful to be able to make a contribution , with the hope that a cure for mitochondrial disease will be discovered. A dear friend of mine has 2 children with mito,who are young adults now. These precious young adults are blessed to have parents who are faithful,dedicated,and strong advocates for their medical care. I pray that one day children with mito can get cured.»


Zach Reisman, $1,600 – January 4, 2022

«Zach Reisman (Zach Designs) is so happy to make this donation to The Liam Foundation. The amount is comprised of 10% of his 2021 gross sales, contributions from his customers and was topped up by Zach.»


Wayne Newton, $500 – January 3, 2022

«The fighting Irish»


Anonymous, $10 – December 24, 2021


Ian Mackenzie, $100 – December 19, 2021


Shirley Myers, $100 – December 15, 2021


Marie-Pier Gagnon, $50 – December 13, 2021


Rachel Déziel, $50 – December 10, 2021


Sergio De Rose, $100 – December 10, 2021


Dominique Zanetti, $50 – December 10, 2021


Mayacom, $200 – December 10, 2021


SHARON DUNCAN, $100 – December 3, 2021


Diane Bondaruk, $500 – November 28, 2021


Craig Padgett, $100 – November 22, 2021


Wendy Singer, $50 – November 16, 2021


Brian Maher, $100 – October 29, 2021


James Hollens, $20 – September 25, 2021


Anonymous, $50 – September 25, 2021


Siobhán Mattison, $50 – September 24, 2021


Anonymous, $100 – August 24, 2021


Cyndia Cameron – August 22, 2021

«love»


Jonathan Buchanan, $50 – August 21, 2021


Anonymous, $1,000 – August 19, 2021

«Keep up the good fight little dude!»


Anonymous, $250 – August 11, 2021


Peter Hodge, $50 – August 5, 2021


Chris Greer – August 5, 2021

«♥️

Love you King Liam»


Anonymous, $200 – August 3, 2021


Kerry Carty, $50 – July 29, 2021


Anonymous, $60 – July 23, 2021


Viviane Ottoni, $25 – July 20, 2021

«De votre voisin Benjamin qui aimerai beaucoup jouer avec Liam :)»


Luc Lacelle, $250 – July 15, 2021


Anonymous, $1,000 – July 8, 2021

«We are thinking of you guys always. Stay Strong.»


Brian Symonds, $100 – June 14, 2021

«In memory of David Simons (1800-1878) of Ireland your great great great grandfather on your mother's side of the family.»


Ann-Marie Cochrane, $100 – June 8, 2021

«Liam - we heard your dad on the Team 690 and we want you to know that we hope every little step - always forward grows and builds up every day to support you!»


Corey Pomkoski, $50 – June 8, 2021

«Liam! You are an inspiration! Keep up the fight, keep smiling and (since I just heard your dad Kevin on TSN Radio and I know you're a Habs fan) Go Habs Go!»


giuseppe libertella, $25 – June 8, 2021


Matt Reasoner, $50 – May 28, 2021

«Sending support from Arkansas!»


Marty Devey, $150 – May 21, 2021


Bronwen Martin, $25 – May 10, 2021


Lamcar logistics, $100 – May 9, 2021


Chloe Sholl, $25 – May 8, 2021

«Sending lots of love and hope for your family and others battling this disease. In honour of Suzie Shaffer's birthday.»


Cassidy Sholl, $25 – May 7, 2021

«Wishing Liam and his family a healthy and happy life together, full of peace.

From a hopeful stranger in Nova Scotia!»


Linda Graney, $25 – May 7, 2021

«In honour of Liam, through Lorri Benedik’s Birthday wish!»


Stephanie Shaffer, $5 – May 6, 2021


Anonymous, $25 – May 2, 2021


Kheyra King, $25 – April 28, 2021


Anonymous, $50 – April 27, 2021

«Thank you for what you do. Never give up the hope and always keep up the fight.»


Pilar Masegosa, $20 – April 24, 2021


Katia Tendland, $100 – April 24, 2021


Barbara Martin, $100 – April 23, 2021


Randi Cerone, $100 – April 23, 2021


Suzanne Shaffer, $100 – April 22, 2021

«With tremendous hope for Liam, your family and all the families you now fight for.»


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