Half-Marathon for the Canadian Cerebral Palsy Registry - Lena Faust

Half-Marathon for the Canadian Cerebral Palsy Registry - Lena Faust

Why I’m running in support of the Canadian Cerebral Palsy Registry:

Having a very mild form of spastic cerebral palsy (CP, a permanent neuromuscular disorder that impacts movement, coordination and muscle tone), I’m very lucky to have been able to push my limitations to enjoy almost any physical activity I attempt. However, there are over 60,000 other people living with CP in Canada, many of whom unfortunately face far greater challenges than I. In fact, about one third of CP patients are unable to walk. Although CP is the most common physical disability in children, there is no cure, and much remains to be understood about the condition's risk factors and long-term management. By collecting long-term, Canada-wide data on children with CP, the CP Registry is working towards answering these important questions, so I am running the Montreal Half-Marathon on September 22nd, to raise funds in support of these research efforts, in the hope that the next generation of children with CP can grow up with the best possible tools to reach their goals. A big thank you to everyone for your help!

My story:

As the child of German parents, almost born on a Dutch airline, over Canadian airspace, en route to the US, I suppose my story, as any story, could have begun (and ended) in a variety of different ways. I am incredibly lucky that it began exactly as it did.

While flying from our home country, Germany, to the US for a family holiday, my mother went into labour on the plane, in what was only her 24th week of pregnancy. Given that the chances of survival for a baby delivered this early were slim, particularly in mid-flight without immediate medical attention, the situation seemed bleak. After some discussion, the plane was diverted to a specialised neonatal intensive care unit in Calgary, Canada, where I was born six weeks later, weighing only 1,820 grams. Given the oxygen deficiency I experienced during my premature birth, I was fortunate to be born with only a very mild form of cerebral palsy. After a month in the hospital, we were able to return home to Germany.

One might describe this as a bit of a rough start, but it has ultimately shaped my life in many positive ways. Given that an entire airplane was diverted from its planned destination to Canada on my behalf, unexpectedly making me a tiny new Canadian citizen, I always thought I should come back one day. So in 2012, I moved from the small tropical island of Singapore, where I grew up, to Canada. Having recently started my PhD at McGill University, I was happy to find out that the Canadian CP Registry is based in Montreal, and was eager to support this important research initiative in some way.

For more information about the CP Registry and its research, see: https://www.cpregistry.ca


Anonymous, $95 – October 9, 2019

Rosemarie und Hermann, $150 – September 25, 2019

«Sei herzlich gegrüßt von deiner Oma und deinem Opa aus Haingrund!»

Laura Bland-Lasso, $50 – September 24, 2019

«Amazing work Lena. Good luck on Sunday!»

Andrée-Anne Sabourin, $25 – September 24, 2019

Annika Walter-Schantz, $25 – September 22, 2019

«Liebe Lena, tolle Sache mit deinem Spendenlauf! Viel Erfolg heute und am Ende vielleicht sogar ein Runner‘s High?! You Go, Girl!»

Amélie Gauthier-Beaupré, $25 – September 22, 2019

«You are an inspiration Lena! T’es capable!!! ❤️»

Dennis McFern, $25 – September 21, 2019

Susanne Faust, $500 – September 21, 2019

«Liebe Lena, ich bin wahnsinnig stolz auf dich und hatte Tränen in den Augen, als ich dich in den Nachrichten gesehen habe. Du machst so viel aus deinem Leben und denkst dabei immer an andere. Das ist einfach wunderbar. Ich wünsche dir für deinen Lauf viel Glück und Durchhaltevermögen. Drück dir ganz fest die Daumen.»

Dieter Hotz, $200 – September 21, 2019

Anonymous, $500 – September 21, 2019

«Liebe Leni, you are a great inspiration - I admire your spirit and how you dedicate your life in helping others. Your path was set many years ago. You accepted it and now you are running your course,... Keep on going. Wishing you strength, endurance and the gratitude and happiness when you reach your goals in life. All the Best - and Happy birthday :)»

Jane McQuarrie, $25 – September 21, 2019

Anonymous, $25 – September 20, 2019

«Best wishes you are an inspirational person greatness is in your future ❤️»

Anonymous, $50 – September 20, 2019

«Bravo for your dedication to this cause»

Anonymous, $100 – September 20, 2019

Roger H. Bednarchuk, $25 – September 20, 2019

Alan Takenaka, $50 – September 20, 2019

«An inspiration! Good luck in the half marathon!»

Anonymous, $100 – September 16, 2019

Anonymous, $250 – September 8, 2019

Thomas Hies, $100 – August 15, 2019

Gordon Rodrigues, $200 – June 28, 2019

«To your indomitable spirit to making lives better»

Anonymous, $100 – June 28, 2019

«Keep up the good work»

Sharad Desai, $250 – June 28, 2019

«Dear Lena - we love your inspiring story and you mother played a huge part in our daughters life. All the best for the run! Verena and Sharad Desai, Singapore»

Shehe Abdulla, $25 – June 23, 2019

Petra Chun, $200 – June 19, 2019

Anonymous, $100 – June 9, 2019

«Way to go Lena!»

Melissa Vitagliano, $25 – June 4, 2019

Laura Munaro, $100 – June 4, 2019

Anonymous, $100 – June 3, 2019

Susannah Ripley, $25 – June 1, 2019

Tripti Pande, $30 – May 21, 2019

«Keep inspiring Lena! We'll be cheering for you in September!»

Karin Galley, $100 – May 20, 2019

Michaela Groeopmair, $25 – May 18, 2019

«Viel Glück Lena!!»

Anja + Familie, $50 – May 16, 2019

Charity Omenka, $20 – May 13, 2019

«You are an inspiration! Keep winning!»

Emily MacLean, $25 – May 13, 2019

«Best of luck, Lena!! Great initiative and message :)»

Sophie Huddart, $25 – May 13, 2019

«Great job, Lena!»

Madlen Nash, $25 – May 13, 2019

Danielle Cazabon, $25 – May 13, 2019

«Way to go, Lena!!!»

Mikashmi Kohli, $40 – May 12, 2019

«This is amazing, Lena! Keep going!»

Susanna Xiang-Xiao, $100 – May 12, 2019

Paulami Sen, $20 – May 11, 2019

«Way to go Lena! All the best :)»

Emmanuelle Gareau, $150 – May 11, 2019

«My way to thank you...and support you! :-) Go Lena, go!!»

Anika Mukherjee – May 11, 2019

Ayala Ples, $25 – May 11, 2019

Anonymous, $100 – May 11, 2019

Madhukar Pai, $100 – May 11, 2019

«Proud of you, Lena! Keep going!!»

Anonymous, $100 – May 11, 2019

Thoby Cameron, $25 – May 11, 2019

«Go get em Lena :)»

Alan Trumble, $20 – May 10, 2019

Alexandra Brennan, $40 – May 10, 2019