Canadian Biliary Atresia Registry
Biliary atresia (BA) is a rare pediatric liver disease that manifests exclusively in newborn infants in the first 2-4 weeks of life. BA is the most frequent cause of end-stage liver disease and liver-related death in children (of any age) and the leading indication for liver transplantation in the pediatric population. The severity and rarity of BA mean that new knowledge and best clinical evidence are best obtained from collaborations enabled by national and international registries.
Your donation will go towards establishing and ensuring the longevity of the Canadian Biliary Atresia Registry, which will provide evidence-based data to optimize standards of BA care in Canada. The registry will provide a critical national collaborative platform for research, education, and knowledge translation. For more information, please visit cbar.ca.